-
Leap Together Podcast: Episode 2 Taleena Koch
Summary In this episode of the Leap Together podcast, we speak with Taleena Koch, a leading patient advocate and founder of the Breathe Support Network, one of the largest global online communities supporting individuals living with Idiopathic Pulmonary Fibrosis (IPF) and other forms of pulmonary fibrosis. Taleena’s advocacy journey began… Read more ⇢
-
Leap Together Podcast: Episode 1 Christine Gustafson
Summary In this episode of Leap Together, host Zach Gobst, CEO of Leapcure, sits down with Christine Gustafson, Founder and CEO of the Thyroid Eye Disease (TED) Community Organization, the only nonprofit exclusively focused on TED. Understanding TED Diagnosed in 2009, Christine faced a challenging and isolating journey. At that… Read more ⇢
-
Managing Non-Cystic Fibrosis Bronchiectasis: Current Treatment Options
COPD, Health & Fitness, Health & Wellness, Health Awareness, Health Conditions, Healthcare, Medical Conditions, Medical Research, Medical Treatments, Respiratory, Respiratory HealthNon-Cystic Fibrosis Bronchiectasis (NCFB) is a chronic lung condition that often flies under the radar yet it affects an estimated 500,000 people in the United States alone, with many more likely undiagnosed due to symptom overlap with other respiratory diseases like COPD and asthma. At its core, NCFB involves permanent… Read more ⇢
-
Understanding Osteoporosis: Causes, Symptoms & Management
Osteoporosis is a chronic condition characterized by reduced bone density, leading to fragile bones and increased fracture risk, particularly in postmenopausal women and older adults. Early detection, screening, and proactive management with lifestyle changes, supplements, and medications can help maintain bone health, prevent fractures, and improve quality of life. Read more ⇢
-
Living with Chronic Neutropenia: A Guide for Patients and Families
Chronic neutropenia is a rare condition that can affect people of all ages, often requiring long-term management, awareness, and support. For patients and families, navigating life with chronic neutropenia may involve adapting routines, learning about potential risks, and finding community through advocacy and resources. This guide aims to provide accessible,… Read more ⇢
-
Finding Real Solutions by Listening to Patients: Lessons from a Fuchs’ Dystrophy Study
This post discusses a shift in patient recruitment strategies for a Fuchs’ Dystrophy clinical trial, emphasizing the importance of addressing financial concerns over traditional messaging. By focusing on the high costs of surgery, the study saw a significant increase in participant engagement, with 66% of enrollments coming from targeted search… Read more ⇢
-
World Health Day 2025: Healthy Beginnings, Hopeful Futures
World Health Day, celebrated on April 7th, promotes global health awareness and equitable healthcare. The 2025 theme, “Healthy Beginnings, Hopeful Futures,” focuses on improving maternal and newborn health, advocating for access to quality care and reducing preventable deaths. It emphasizes health equity and encourages community involvement and policy change for… Read more ⇢
-
Top 10 reasons Advocacy Groups are Crucial to Advancing Clinical Research
Advocacy groups play a crucial role in enhancing clinical research by ensuring protocols reflect patients’ needs, increasing awareness of trials, reducing health disparities, and strengthening trust in medical practices. Their involvement leads to more inclusive studies, better recruitment, and improved treatment outcomes, ultimately shaping a future of equitable healthcare for… Read more ⇢
-
Prader-Willi Syndrome Information and Resources: Causes, Insights, and Treatment Options
Prader-Willi Syndrome (PWS) is a rare genetic disorder characterized by hyperphagia—an insatiable hunger that can lead to life-threatening obesity. This comprehensive guide explores the causes, symptoms, and management strategies for PWS, including approaches to address hyperphagia through structured dietary control and behavioral interventions. Discover expert resources and support networks for… Read more ⇢
Where Clinical Trial Community Leap Together
Weekly candid conversations with people shaping the future of clinical research.
