Dermatomyositis is a rare inflammatory disease that results in changes to the muscles and skin. This condition can affect both adults and children, although adults are affected far more commonly.
In this post, we will go over some of the factors that contribute to the likelihood of someone having dermatomyositis, where on the body dermatomyositis affects people, as well as current and future treatments for the condition.
For individuals who might be interested in helping to advance dermatomyositis research, we invite you to explore our research registry here!
What causes dermatomyositis?
The exact cause of dermatomyositis is unknown, but some possible causes include genetic factors, cancer, and autoimmune disease.
Although we don’t know what exactly causes dermatomyositis, we do know that the condition can occur at any age. Most often, it affects adults ages 40 to 70. Additionally, women are twice as likely as men to be diagnosed with the disease. For more information on the causes of dermatomyositis, John Hopkins Medicine is a great resource.
Where does dermatomyositis start?/Where can dermatomyositis be found?
Dermatomyositis can be found affecting the skin and muscles. Most commonly, it can be found on the face and eyelids, as well as on the knuckles, elbows, knees, chest, and back. Another common symptom is muscle weakness, especially in the neck, hips, back, and shoulders. Symptoms can be quite painful or uncomfortable, making daily life a struggle. One patient shared with the Leapcure team that even wearing certain articles of clothing and completing simple tasks have become difficult. To learn more about the effects of dermatomyositis on the body, Myositis Support & Understanding is a great organization that offers information as well as support for patients.
Can Dermatomyositis go away?
Currently, there is no cure for dermatomyositis. However, there are some existing treatments that you can learn more about in our other blog post about this condition. Additionally, there is existing and upcoming clinical research that hopes to discover even more treatments for dermatomyositis.
We at Leapcure have found that clinical research can and has given patients hope for managing their dermatomyositis. When other treatments are difficult to access, or when the possibility of symptom improvement seems bleak, clinical trials can be an important option for patients to consider.
If you would like to hear about upcoming clinical trials that you may be eligible for, please enroll in our research registry here!
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