Thyroid eye disease, or TED, is an autoimmune disorder affecting approximately 16 in every 100,000 women and 2.9 in every 100,000 men, according to the Cleveland Clinic. Often associated with Graves’ disease, where the thyroid overproduces hormone (hyperthyroidism), TED can also occur alongside normal or low thyroid levels, such as in Hashimoto’s Disease. This article focuses on identifying the common symptoms of thyroid eye disease, the process of TED diagnosis, and available treatment options.
For those interested in contributing to TED research, please consider joining our research registry here.
Recognizing Thyroid Eye Disease Symptoms
Thyroid eye disease (TED) symptoms, also known as Graves’ disease eye symptoms, can manifest in one or both eyes. Common reported symptoms include:
- Dry or Gritty Eyes
- Bulging Eyes (Proptosis)
- Double Vision
- Eye Pain or Discomfort with Movement
- Incomplete Eye Closure
Impact of TED on Quality of Life
These symptoms significantly impact a patient’s quality of life and daily functioning. One patient shared with Leapcure’s Patient Success Coordinator that “TED makes everything in life miserable, it makes it impossible to really live my life and be happy with constant discomfort and a distorted face.” It’s crucial to recognize and empathize with these experiences to better support individuals living with TED as they explore treatment options and engage in research.
TED Diagnosis
A Thyroid Eye Disease diagnosis involves a comprehensive evaluation of symptoms, medical history, and physical examination. Diagnostic tests such as imaging studies, blood tests, and eye examinations are commonly used to confirm the presence of TED and assess its severity.
Potential Treatments for Thyroid Eye Disease
While no single cure exists for Thyroid Eye Disease, various approaches help manage symptoms and improve quality of life:
- Home Remedies: Patients can alleviate symptoms with methods like using eye drops for dryness, wearing sunglasses or specialized glasses to manage double vision, and adjusting sleeping positions to reduce eye discomfort.
- Medications: Ophthalmologists may prescribe medications such as steroids, Selenium, and Teprotumumab to alleviate symptoms. Selenium is typically taken orally, while steroids and Teprotumumab are administered intravenously.
- Surgical Options: In severe cases, surgical interventions such as orbital decompression, eye muscle surgery, or eyelid surgery may be considered.
Continued spread of information about TED symptoms, diagnosis, and treatment options is essential for addressing patient inquiries and understanding the significant impact of this condition on quality of life. Leapcure aims to raise awareness of thyroid eye disease while offering support tools based on insights from patient interactions and advocacy. To learn more about TED and explore research opportunities, visit our website here.
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