Addressing the Knowledge Gap among Rare Disease Patients

By Kartik Ramkumar, Patient Success Manager at Leapcure In some of my patient conversations, what stands out the most is the stress and frustration in their voice. They share their symptoms (often chronic or difficult) and express their frustration with misdiagnoses and the lack of available answers to why they are experiencing certain symptoms. Sometimes,… Continue reading Addressing the Knowledge Gap among Rare Disease Patients

The Lasting Impact of COVID-19 on the Research World

Leapcure is an organization whose work can cut years off research timelines, getting important treatments to patients who need them faster. In the past 12 months, we have seen the speed and efficiency with which the research world has pulled together to develop, approve and distribute vaccines and treatments globally. Considering that the average clinical… Continue reading The Lasting Impact of COVID-19 on the Research World

Our challenges and opportunities – looking back from 1/20/21 (anagram day!)

Leapcure was started in 2015 because Clinical Trials were designed without anticipating behaviors. Patient advocacy groups were too often on the outside of the study planning process. Researcher burden was frequently an afterthought. The patient experience came last. When we accompany our CRO clients in bid defenses, we still go in hoping for the last… Continue reading Our challenges and opportunities – looking back from 1/20/21 (anagram day!)

What do the SATs have in common with site engagement?

Photo by Pixabay on Pexels.com When taking SATs (for US university admissions) any questions responded to that are incorrect remove points from your score. For clinical trial site engagement, referrals work the same way. Every referral sent to a site that isn’t a fit for that study reduces the likelihood of sites enrolling on time. … Continue reading What do the SATs have in common with site engagement?

Four Frequently Asked Questions About Clinical Trial Participation

For patients, participating in clinical trials may potentially help researchers understand more about treating their condition. Moreover, participating in a clinical trial can frequently provide the opportunity for patients to become an integral part of support communities for their conditions.   When signing up for studies through Leapcure, individuals can often times be quickly connected with… Continue reading Four Frequently Asked Questions About Clinical Trial Participation

Social Capital in the Clinical Trial World: A Recruitment Perspective

At Leapcure, we are at the forefront of building networks between the Patient Advocacy sphere and the Clinical Trial sphere. We foster and nurture relationships with Patient Advocacy Groups (PAGs), with a view to giving their patient networks direct access to clinical trials for their conditions. Given that PAGs are a trusted voice for patients,… Continue reading Social Capital in the Clinical Trial World: A Recruitment Perspective

Leapcure Community Building in 2019

For the past four years, Leapcure has focused on connecting existing patient advocacy groups to clinical research. Across our 3,000+ global partnerships with organizations like National Eczema Association and Together with ALS (Sweden), it’s been a key component of achieving our mission of improving the voice of the patient in clinical research. To this day… Continue reading Leapcure Community Building in 2019