Kidney Health for Everyone Everywhere is the theme for this year’s International Kidney Day Lifestyle is deeply affected in kidney disease patients. Chronic kidney disease, its associated symptoms and its treatment (including medications, dietary and fluid restrictions, and kidney replacement therapy), can disrupt and constrain daily living and impair the overall quality of life of… Continue reading Living Well with Kidney Disease
On International Women’s Day 2021 we’d like to take the time to recognize successes of women around the world as well as to candidly address the work that still needs to be done. Accomplishments have been made and paths have been forged in the acknowledgment of women’s capabilities, but there remains a journey which requires education and action to forge a path of integration and equity.
Medicine and medical care can often be complicated with lots of unknown — especially if you are not a medical professional. It can be a scary time with a lot of information to try to process which can become overwhelming. You may find there are times when a healthcare provider is explaining something to you… Continue reading Why You Should Ask Why
This article in the New York Times describes the innovations and changes that clinical trials have made during the pandemic. At the start of the pandemic, nearly 6,000 of the clinical trials registered on clinicaltrials.gov were stopped. For clinical trials that weren’t stopped, researchers re-designed their clinical trials to include virtual monitoring and remote visits… Continue reading Clinical Trials Innovations during COVID-19
Patients that suffer from one (or more) of the nearly 7,000 rare diseases currently recognized have to fight for their diagnosis, treatments, and communication from medical providers. There are between 25-30 million people in America and 30 million in Europe suffering from rare diseases. For these patients being curious about their diagnosis and symptoms is… Continue reading Rare Disease Awareness
The past year has been a challenging one on many levels. A global pandemic has brought on issues of fear, financial concerns and the unknown. Many may feel a sense of apathy and difficulties finding a sense of purpose. One way to consider trying to find a ray of hope and a glimmer of happiness… Continue reading Getting Through Giving
By Kartik Ramkumar, Patient Success Manager at Leapcure In some of my patient conversations, what stands out the most is the stress and frustration in their voice. They share their symptoms (often chronic or difficult) and express their frustration with misdiagnoses and the lack of available answers to why they are experiencing certain symptoms. Sometimes,… Continue reading Addressing the Knowledge Gap among Rare Disease Patients
Leapcure is an organization whose work can cut years off research timelines, getting important treatments to patients who need them faster. In the past 12 months, we have seen the speed and efficiency with which the research world has pulled together to develop, approve and distribute vaccines and treatments globally. Considering that the average clinical… Continue reading The Lasting Impact of COVID-19 on the Research World
Leapcure was started in 2015 because Clinical Trials were designed without anticipating behaviors. Patient advocacy groups were too often on the outside of the study planning process. Researcher burden was frequently an afterthought. The patient experience came last. When we accompany our CRO clients in bid defenses, we still go in hoping for the last… Continue reading Our challenges and opportunities – looking back from 1/20/21 (anagram day!)
Photo by Pixabay on Pexels.com When taking SATs (for US university admissions) any questions responded to that are incorrect remove points from your score. For clinical trial site engagement, referrals work the same way. Every referral sent to a site that isn’t a fit for that study reduces the likelihood of sites enrolling on time. … Continue reading What do the SATs have in common with site engagement?
blog.leapcure.com 